It's important to note that dysautonomia and vestibular issues can sometimes occur together or overlap, especially if someone experiences a traumatic event like a fall. Each person's experience may vary, and a comprehensive evaluation by healthcare professionals, such as neurologists or otolaryngologists, is crucial for accurate diagnosis and appropriate management strategies.
That being said,we all want best care at affordable pricing , et al we are on budgets here.
Let me first describe issues :
Dysautonomia: Dysautonomia refers to a group of disorders that affect the autonomic nervous system (ANS). The autonomic nervous system is responsible for regulating automatic bodily functions such as heart rate, blood pressure, digestion, body temperature, and other vital functions. In dysautonomia, there is a dysfunction or impairment in the functioning of the autonomic nervous system. This can lead to a wide range of symptoms, including lightheadedness, fainting, rapid heartbeat, digestive problems, temperature dysregulation, fatigue, and more. Dysautonomia can be primary, meaning it is the main condition, or it can be secondary to another underlying medical condition or injury.
Vestibular issues: The vestibular system is a complex network of structures in the inner ear that helps maintain balance, spatial orientation, and coordination of eye movements. When there are problems with the vestibular system, it can result in vestibular issues or vestibular disorders. These disorders can cause various symptoms such as dizziness, vertigo (a spinning sensation), imbalance, difficulty concentrating, blurred vision, and nausea. Vestibular issues can be caused by various factors, including trauma to the head or inner ear, infections, certain medications, or other underlying conditions.
General suggestions for finding information on managing symptoms like lightheadedness, fatigue, and potential dysautonomia and vestibular issues.
Here are a few steps you can take:
Reliable health websites: Look for reputable health websites that provide information on dysautonomia, vestibular disorders, and related conditions. Some well-known sources include Mayo Clinic, WebMD, Cleveland Clinic, and the National Institutes of Health (NIH). These websites often provide comprehensive information on symptoms, causes, and management strategies.
Support groups and forums : Online support groups and forums can be valuable resources for individuals dealing with similar symptoms or conditions. Look for groups or forums specifically focused on dysautonomia, vestibular disorders, or related topics.
Here are some general tips on how to find and connect with such groups:
Online search: Conduct a web search using keywords such as "dysautonomia support group," "vestibular disorder forum," or "autonomic dysfunction community." This should help you discover various online groups and forums where individuals with similar conditions gather to share experiences and information.
Members may share their personal experiences, insights, and tips for managing symptoms. However, remember that information obtained from these sources should be used as a starting point for discussion with healthcare professionals, as individual experiences can vary.
Condition-specific organizations: Look for reputable organizations that focus on dysautonomia, vestibular disorders, or related conditions. These organizations often provide resources, support networks, and online communities where individuals can connect. Examples include Dysautonomia International, Vestibular Disorders Association (VEDA), and The Ehlers-Danlos Society (for certain forms of dysautonomia).
Social media platforms: Explore social media platforms like Facebook, Twitter, or Reddit. Search for groups or communities related to dysautonomia, vestibular disorders, or specific conditions within those categories. Many of these platforms have dedicated groups or subreddits where individuals can seek support and advice.
Medical professional recommendations: Consult with healthcare professionals who specialize in these conditions, such as neurologists, otolaryngologists, or autonomic specialists. They may be able to recommend specific groups or forums that align with your friend's needs.
Seek specialized professional advice: If symptoms persist or worsen, it may be beneficial to consult with healthcare professionals who specialize in dysautonomia, vestibular disorders, or functional neurology. They can provide a more accurate diagnosis and suggest appropriate treatment options. Some specialists may offer telehealth or virtual consultations, which could be more affordable and convenient.
Natural remedies and lifestyle changes: While there may not be definitive natural or alternative treatments for these conditions, some individuals find relief through certain lifestyle modifications. It is important to prioritize self-care, including adequate rest, regular exercise within your limits, and a healthy diet. Stress management techniques, such as relaxation exercises or mindfulness practices, may also be helpful. However, it's important to consult with healthcare professionals to ensure these approaches are suitable and safe for specific situation.
Important , it's essential to work closely with healthcare provider to receive an accurate diagnosis and appropriate guidance for managing symptoms. They can provide tailored recommendations and determine if seeing a functional neurologist or other specialists is necessary.
Also an online caution,
When exploring online communities, it's important to verify the credibility and reliability of the sources you encounter. Read through the group or forum guidelines, check if they are moderated, and assess the level of activity and engagement within the community.
Remember, online communities and forums can provide valuable support and insights, but the information shared should not replace professional medical advice. Of course as you are doing consult with healthcare professionals for personalized guidance and treatment options.
Read more from the Author Leon Edward at his website and blog TBILiving.com or book co written with Dr Anum Khan, "Concussion, Traumatic Brain Injury, Mild TBI Ultimate Rehabilitation Guide, Click Here
About the book's co-authors Leon Edward and Dr. Anum Khan
For Leon Edward, the past 35 years since the tbi left one lingering desire: the need to give something back, a way to provide something meaningful for the families and loved ones of patients who now, or in the future, will face the same painful disruption of their lives and the same long journey he had to undertake such a long time ago.“I want to be clear in the introduction that I am not a health professional as my co author Dr. Khan , but rather an engineer that has had a tbi" - Leon Edward
This book was written by one deeply caring brother for his brothers and sisters suffering the same or even a worse fate after surviving traumatic brain injuries – and with deep admiration and appreciation for their families and caretakers who will help to guide them.
For Leon it has become an ingrained part of his existence to help others enjoy life after suffering serious injuries, even if it only means that he can help others who are disabled or living alone with words of hope, encouragement of inspiration.
Dr. Anum Khan enjoys crafting health content that genuinely helps the readers in a practical and insightful way. She believes that a healthy life is everyone’s true right, and it must be taught in an easy and effective manner using the most authentic information and relatable voice.
Their book comes with the same intent: To help sufferers, families and professionals learn more about TBI with a holistic approach, and to equip them with all the knowledge they will need on this journey.
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The author Leon Edward, a TBI survivor who has overcome much and succeeded in an engineering and managerial career plus a personal growth-focused career as an author afterward.
After the gunshot to the head, he had a remarkable team to rehab his physical and mental health with amazing work on improving cognitive abilities.
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